Hand to Hold's Official Blog: Written by Parents for Parents

When Your Former Preemie Needs Major Surgery

Recovering from kidney transplant

Recovering from kidney transplant

Like most micro-preemies, my Daphne, faced many challenges in the NICU:  2 months on the respirator, BPD, infection scares, digestive issues, kidney failure… With all that, one thing we did not encounter was surgery. Yet, we knew from the very first days that she would need major surgery, eventually. She was born with two congenital heart defects, an ASD (small) and a VSD (very large) that would need to be repaired through open-heart surgery.

She was discharged at five months with a surgery date on the calendar. We were, needless to say, terrified, but excited that with her heart fixed, she would be able to kick her oxygen habit. Heart surgery was, dare I say, easy. The procedure was successful and totally uneventful, and four days later, she came home again. Daphne still sees the cardiologist once a year, but there are no concerns. She has a healthy heart.

Her kidneys, on the other hand, did not recover from the injury they suffered at birth [Continue reading]

World Blood Donor Day: How a Donor Saved My Preemie

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I never imagined that a complete stranger - five complete strangers, actually - would save my son's life. Today, June 14, is World Blood Donor Day. Worldwide, there are 107 million blood donations every year. That's a big number and I think a lot … [Continue reading]

The Strength of My Husband, An Amazing NICU Dad

Andy participated in care times for James as much as possible.

Having a baby in the neonatal intensive care unit is a very personal experience. While we face many similar circumstances and the same uncertainty of what the future holds, how we cope from day-to-day can be different for each one of us. I'm thankful … [Continue reading]

Thank You to the Fathers of Preemies

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Our Kylie was born ten weeks early due to my diagnosis with preeclampsia. I knew something was wrong when I was 29 weeks pregnant and my head hurt so bad that I was vomiting and could barely see. My husband rushed me to the emergency room. It all … [Continue reading]

{Friday Feature} Bee Mighty

Richter Family

Our son, the mighty Shaw Richter, was born at 27 weeks, just over two pounds and spent 122 days in the NICU. Shaw’s medical history is long in his short 2 years of life. He suffered a stroke at birth and endured 22 spinal taps that left a … [Continue reading]

Siblings: To Have or Have Not?

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Are you thinking about having another child, but not sure it is the right decision? This is how I wrapped my head around having two more children after having a child with severe cerebral palsy. When our oldest son suffered a significant birth … [Continue reading]

{Professional Insight} Empowering Your Preemie to be Capable, Responsible and Resilient

Lisa C Greene

A mom shares: “When Katelyn was born seven weeks early, it was tough. We just didn’t know how things would turn out. She has some delays and ongoing medical issues but, in the big picture, she is doing okay. The challenge now is how do we raise … [Continue reading]

Keeping Your Preemie Safe

Bryce Falls

"Be Careful, Baby" The three little words that come out of my mouth at least a million times a day. But when your almost four year old doesn't yet walk - and still struggles mightily with motor planning - falls, bumps and bruises are an all too … [Continue reading]

Is Your Grandchild in the NICU? Here’s How You Can Help

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One of the hardest moments I experienced after the birth of my son was telling my parents that he was in the NICU (neonatal intensive care unit).  I will never forget the pain in their eyes. The birth of a premature or sick baby is not merely … [Continue reading]

{Friday Feature} A Summer Called Angel

Angela O

Meet Sola Olu who is the mother of two children born premature. She is the author of a memoir, The Summer Called Angel, and shares how she and her husband held on to hope for 7 months while their daughter weighing 1.15 ounces at birth was cared for … [Continue reading]